“they did not stop to think they died instead”
“‘next to of course god america i,’” e.e. cummings
Over the course of a couple hours after my mother was discovered comatose, the ER doctor offered us a choice: airlift my mother to a larger hospital for surgery to remove the clot in her brain that caused her stroke or leave her comatose, each moment destroying more of her brain.
Just twelve days later, in front of my mother then in a rehabilitation facility after responding well to the high-risk surgery, my father became unresponsive; the EMS team summoned by a 911 call were frantically trying to resuscitate my father, kept alive by his pacemaker/defibrillator. Since my father had resisted switching off the defibrillator and choosing a do-not-resuscitate (DNR) order, the lead EMS responder asked me where I wanted him to be transported.
Because of the proceeding days when we all scrambled against my parents’ health insurance, my first thought was how was I to know where his insurance would cover this event (ultimately the last moments of his life).
While cycling on the local rail trail near my university and where my mother now remains in a single room — the building in which she witnessed my father’s death — a friend and I pedaled up to a road crossing where a father sat on his bicycle with a trailer attached for children to ride along.
This intersection has decorative circles of brickwork on each side of the road. As this man crossed, he steered poorly around the brickwork — the cart left wheel rolling up onto the brick, tipping the cart and his two sons over onto the side of the trail and jerking the bicycle out from under the father.
These are all complicated and difficult stories about choice and freedom in the U.S.
The U.S. is a cruel and calloused culture that values a false narrative about freedom and choice, an idealized version of freedom and choice as concepts that trump all else.
Even human dignity.
Especially in healthcare, education, and providing social support for the poor, the guiding principle is giving people choice, believing that individual responsibility is the root cause of poor health, failing students and schools, and finding oneself in poverty.
The meritocracy and rugged individualism myths are so powerful in the U.S. that winners and losers both cling to them even when the game is revealed to be fatally rigged. As Tim Maly explains:
So there are people who can be so wrapped up in a certain worldview that even in the face of serious evidence that they have been taken in, and despite many warnings from the rest of the world, they persist. Indeed, warnings from the rest of the world seem to serve only to entrench them in their position. With some of them, it’s as if they end up making bad choices specifically to spite the people warning them.
The U.S. has instilled a tremendous amount of self-loathing, in fact, among marginalized groups (blacks, English language learners, women) who feel compelled to embrace the bitter American Dream in order to be American — even as each of them could utter as Langston Hughes wrote:
Let America be America again.
Let it be the dream it used to be.
Let it be the pioneer on the plain
Seeking a home where he himself is free.
(America never was America to me.)
The parent cycling with his children in tow was free to choose placing those boys in the trailer, free to choose to pedal along the trail and then to send them tumbling.
And there we must admit, parental choice is not universally a good thing, and we must also confront that anyone’s choice necessarily encroaches on the freedom of others: children routinely suffer the consequences of their parents’ choices.
The children were fine, however, but my mother and father — along with our family — have been navigating a hellscape of healthcare dictated by patient choice and freedom, jumbled with a nightmare of bureaucracy in which mandated and bounded choices are not really choices at all.
In the U.S., we celebrate the choice between a Toyota Camry and Honda Accord (essentially the same car with the free market promise of competitive prices in your local market!), but few people are afforded the freedom of not buying a car at all — and no one is allowed the freedom from sales and property taxes or freedom from insurance and liability for all that driving.
Freedom and choice are in fact a nasty shell game used to keep the masses occupied so that they do not realize only the few have some sort of economic freedom and choice because of the labor of those masses, those people drawn to the myths like moths to a flame but never allowed to survive the allure.
It’s July 4th, a patriotic orgy in the U.S. that is as shallow and materialistic as the country we celebrate.
A people truly committed to equity and our moral obligations as humans would recognize that sometimes, maybe even often, choice and freedom are not as important as insuring that no one needs to choose because essentials are collectively provided for everyone to insure the dignity of simply being a human.
No child left to the lottery draw of their parents, no sick person tossed into the meat grinder of market-based healthcare, no elderly cast into the dark well of individual responsibility.
As we wave tiny plastic flags today, swill (mostly) cheap beer while overeating from our decadent grills, let us roast in the sun and the recognition that we actually have freedom and choice — and this heartless and selfish country is what we have chosen.
For Further Reading
‘What to the Slave Is the Fourth of July?’ by Frederick Douglass